“Shandra Trantham has Friedreich’s ataxia (FA), a rare genetic disease that is slowly robbing her of the ability to walk and talk…Byrne noticed it was hard for Trantham to use the walker and still have her hands available to work, so he arranged for her to get a LifeGlider, a walking aid that includes a strap around her waist so she can stand hands-free. He also gave her a lab bench at desk height so she could work while seated, and, to solve the problem of lack of coordination in her hands and arms, he arranged for her to have a personal lab assistant who conducts the experiments that she designs. Still, he says, “Certainly without her movement problems, I think things would go faster for her. But she’s been very patient.”
Learn more about Shandra’s work and experiences here: https://people.com/health/24-year-old-researches-treatment-for-her-own-crippling-disease-im-in-a-race-against-time/
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